DISCLAIMER:
Please make sure to check with your Doctor, Neurologist before making any medical decision. Information Provided on this page is for informational purposes only. This page is designed to help people self-advocate and to make informed decisions with respect to one's health care issues.
Ways to Bring Awareness to Devic's Disease/NMO:
Write letters to the editors of local and national newspapers, call or write your State/local Public Officials join grassroots organizations to help you bring awareness to Devic’s Disease and other rare diseases.
RESOURCES
The Mayo Clinic
Specific link to Devic's Disease Diagnosis at the Mayo Clinic WebSite
American Diabetes Association
1-800-DIABETES (800-342-2383)
Disability.Gov offers:
Access to affordable, quality, and accessible health care promotes the well-being and active participation of people with disabilities in their communities and in the workforce. This section of Disability.gov provides information about public and private health insurance, alternatives to institutional care, and developmental health screening for children, as well as resources for people seeking mental health services.
Social Security online:
Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.
Compassionate allowances are a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective medical information. Compassionate allowances allow Social Security to quickly target the most obviously disabled individuals for allowances based on objective medical information that we can obtain quickly.
The Transverse Myelitis Association (TMA)
The Transverse Myelitis Association (TMA) is a non-profit and international organization started in 1994 by family members and persons with Transverse Myelitis diagnosis. TMA has over 5600 members from more than 80 Countries. For more information regarding TMA, please visit their website at
Clinical Trials.Gov
Link specific to Devic's Disease on Clinical Trials
The Walton Centre
The Walton Centre is Dedicated to Research and Treatment for Devic's Disease in England
Walton Centre LiverPool England
Sharecare Ghana (Sharecare4u)
Sharecare Ghana (Sharecare4u) was started in 2006 by a group of people in Ghana with rare neuro-immunological diseases. The group was later widened to include all people with autoimmune conditions - such as Transverse Myelitis, Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica (Devic's disease), Rheumatoid Arthritis, Multiple Sclerosis, Lupus - their families and friends, and the professionals taking care of them. For more Information,Please visit the website at:
Devic's Disease Online Support Group
Devic's Support Group provide support and information for patients with Devic's NMO, their caregivers and friends. We also welcome all researchers and clinicians. Read members stories, share treatment experiences, and post questions to other members from around the world.
The Guthy-Jackson Charitable Foundation
The Guthy-Jackson Charitable Foundation is dedicated to funding basic science research to find answers that will lead to the prevention, clinical treatment programs and a potential cure for Neuromyelitis Optica (NMO) Spectrum Disease.For more information regarding the Guthy-Jackson Charitable Foundation, Please visit the Website at
The Accelerated Cure Project
The Accelerated Cure Project for Multiple Sclerosis is a national nonprofit organization dedicated to curing Multiple Sclerosis (MS) by determining the cause of MS. For more information please visit the site at:
GENETIC AND RARE DISEASES INFORMATION CENTER
NATIONAL ORGANIZATION FOR RARE DISORDERS
NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKES
Genetic Alliances
Sydney Women's Counseling Centre
Our service is ..
Open to all women, regardless of race, income or age.
Conducted in a supportive and friendly environment, by women who are professionally qualified.
Affordable to all - our services are either free or low-cost
Open to women who speak a language other than English, through bi-lingual staff, (usually Arabic speaking), or health care interpreters, or deaf sign interpretation
A resource providing information and support on issues such as:
Domestic Violence
Sexual Assault
Child Abuse
Trauma
Alcohol and Other Drugs
Gambling
Depression
Grief
Self Esteem
Wheelchair accessible.
Accessible to occasional childcare on the premises.
APS HealthCare
Provides Resources: Educational, Medical and Moral Support to individuals on Medicaid.
APS works collaboratively with Medicaid Agencies, state and local governments, health plans, employers and labor trust groups to design and deliver services and solutions to meet today's healthcare challenges. Tailored to address the needs and challenges unique to each population, our services include disease management and care coordination, clinical quality and utilization review, and behavioral health.
By connecting all the players in the healthcare equation - participants, practitioners and payors - APS delivers person-centered, provider supportive services that optimize expenditures and improve health.
APS Healthcare, headquartered in White Plains, NY, is a leading provider of specialty healthcare solutions. The company partners with state agencies in 26 states and Puerto Rico, which serve more than 40 percent of the nation’s Medicaid population. APS delivers customized, integrated healthcare solutions that help people engage in behaviors that optimize their health status. By uniting all participants in the healthcare landscape – individuals, practitioners and payers – APS improves overall health and reduces total healthcare expenditures
For More Information Regarding APS HealthCare, Please Visit Their Website at:
800.305.3720
PatientsLikeMe
PatientsLikeMe is the first and only online data-sharing platform for people with life-changing conditions. Our groundbreaking Openness Philosophy — which promotes the open sharing of symptom, treatment and outcome data benefits both patients and the healthcare industry in new and dramatic ways. We believe it’s the key to improving medical care, accelerating research and bringing new and effective treatments to market in record time. For more information please visit the website at
Tardive Dyskinesia Center
The Tardive Dyskinesia Center (TDC) offers the most comprehensive and up-to-date information on Reglan Tardive Dyskinesia, a movement disorder that causes involuntary and repetitive movements which are irreversible and incurable. For more information about what causes Tardive Dyskinesia, Please visit the TDC at:
DISCLAIMER:
Please make sure to check with your Doctor, Neurologist before making any medical decision. Information Provided on this page is for informational purposes only. This page is designed to help people self-advocate and to make informed decisions with respect to one's health care issues.
