The SistaMoon Foundation has been hearing back from some of our Nations Political leaders regarding more funding for the National Institutes of Health (NIH) as it relates to rare diseases and regarding health care reform.We are proud to say that all the letter writing and phone calls to some of our U.S. Senators, the White House, Canadian Officials and by working along with other organizations such as Genetic Alliance, The American Medical Association (AMA) The Democratic Congressional Campaign Committee, we are making more and more people aware of Devic's Disease and some changes are being made.
Here is a list of legislation that The SistaMoon Foundation has been a part of helping to get passed.
GINA-Genetic Information Nondiscrimination Act (GINA) that was signed into law by President Bush in May 2008
American Recovery and Reinvestment Act-Funds set aside for NIH making it a priority in the FY 2011 budget
The Patient Protection and Affordable Care Act
March 23, 2010
NOTE***Health Care reform has been passed without a Public Option to date.
The SistaMoon Foundation knows that many of us are torn when it comes to how Healthcare should be reformed. Therefore, we are compelled to say that we respect everyone’s opinion with respect to how you believe healthcare should be reformed. We ask that you respect our opinion as well.
