There go I but for the Grace of God
Grace has a passion for reaching out to others that are in need of support and comfort. She has made it her mission, or as she puts it, “her job” to gather information on a rare/uncommon disease called Devic’s disease/Neuromyelitis Optica (NMO). She is a part of a team that has gathered a wealth of information on the most current updates on this disease. Information like new medications, clinical trials and who are the leading researchers in America.
Grace has been surviving this disease since 2005. She is part of a huge support group that reaches out to Devic’s survivors, their families and care givers. It is her desire to provide support and resources to individuals diagnosed and affected with this disease. The support group networks, and draws attention of patients, doctors, researchers, and medical institutions from around the world. Although Grace has suffered a lot due to this disease, she manages to maintain the desire, find time and devote her energy to help support, encourage and uplift others who are diagnosed and affected by this horrible disease. Grace had six episodes of NMO and she suffered paralysis three times. She also had three bouts of ON. According to Grace's research and compared papers she has read, and it seems that roughly 80% of cases are relapsing.
Grace is an inspiration to me and many others. It takes Faith, Courage, Strength and Patience to suffer, yet choose to stand and deliver.
Grace and the team at the Devic’s-Support Group encourages anyone who is affected with Devics-NMO to contact them. Their mission is to offer information for patients, care givers and friends, addressing all with sensitivity and compassion.
This a link for the Mystery ER episode featuring Grace's case. It is not quite accurate, as they combined several attacks for brevity's sake. Her recovery was no where near as easy as it is depicted in the show, and it took much, much longer than just a few weeks. She spent many weeks in the hospital, and additional time in a rehabilitation facility.
For more information regarding Devic's Disease-NMO Please contact Grace at the link below
Shelia Sheckles
Founder& CEO
SistaMoon Foundation for Devic's Disease
Disclaimer
Please make sure to staff with your Doctor/Neurologist before making any medical decisions. This site is informational only. The sole purpose of this web-site is to bring awareness and raise funds for Devic's Disease/NMO.
