Site Updated Tuesday January 12, 2010
Thanks for visiting!From the Founder & CEO Shelia Sheckles
SistaMoon Foundation is filed with the Secretary of State, State of Nevada, Corporate Charter.
Certified by Diana Speltz
Certificate Number C20090810-0702
verification can be obtained at:
SistaMoon Foundation, a non-profit organization was created for many reasons. First, to bring awareness to Devic's Disease. Second, to help raise funds for research and support for individuals diagnosed and affected by this rare disease. Third, to advocate for Devic’s Survivors who can not advocate for themselves. Fourth, the Founder desires to help educate individuals regarding this disease, by providing information from some of the leading researchers (Doctors) who have a vast knowledge of this disease. Devic's Disease is also known as Neuromyelitis Optica (NMO). My daughter Dawn was diagnosed in September 2008.
This foundation is necessary because this disease is so rare and under diagnosed as well as mis-diagnosed as Multiple Sclerosis (MS). Although there are many who are mis-diagnosed, 35 % of African Americans are Mis-diagnosed with MS when they really have Devic's Disease. According to the Walton Centre Medical Services in England, "80-90% of people with Neuromyelitis Optica, are women. (In fact most autoimmune disorders are common in women.)"
Support can include but is not limited to the following:
1. Pay for overnight respite care or more if needed. Care Givers need time to make sure their needs are met thus preventing burn out.
2. Payment for diagnosed individuals to get to a Medical institution that Have knowledge of Devic's Disease and conduct research regarding this disease.
3. Provide payment for Personal Care Attendants after home health care ends.
4. Supplies (ie.depends gloves)
5. Emergency Room fees
6. Co pays at Doctor office visits for those who can not afford the co-payments.
7. payment for proper training in how to care for individuals who are paralyzed.
For example,I have three people who can help me lift and transfer Dawn. Two of them work and can not be consistent. The one that can consistently help, can not lift or transfer Dawn alone. Therefore I have to help. This has caused some injuries to my shoulder and back.
8. Donations to the Mayo Clinic in Arizona
9.Donations to the Walton Centre
10.Burial fees.
We hope this site can bring awareness and attention to this rare and under-diagnosed/mis-diagnosed disease to the attention of every Doctor and every Person in the United States and around the world.
DISCLAIMER:
Please make sure to check with your Doctor, Neurologist before making any medical decision. Information obtained on this site is information found during the research of Devic's Disease.
We hope to see you again! Check back later for new updates to our website. There's much more to come!
Copyright June 1, 2009
Shelia Sheckles
Founder & CEO
SistaMoon Foundation for Devic's Disease
Published by ShecklesDiva Publication
Information obtained on the Website may be used if it is consistent with bringing awareness to Devic's Disease and Credit is given to individual authors.
The SistaMoon Foundation is not in partnership with any other organizations, associations with respect to fund raising, However, we do provide links to other support groups and informational web sites. No one other than the Founder and CEO has authorization to accept offers from individuals to fund raise on behalf of the SistaMoon Foundation. Individuals who have volunteered to sell tee-shirts and pass out fliers on behalf of this foundation have contacted the Founder and CEO personally via email and by phone. If you have any questions, please feel free to contact Shelia Sheckles personally.
Copyright © June 1, 2009
All rights are reserved by Shelia Sheckles
Founder & CEO
SistaMoon Foundation for Devic's Disease
Publication by ShecklesDiva Publications
in order to use Information obtained from this site you must give credit to the individual authors and the information used must be consistent with bringing awareness to Devic's Disease.
Contributions to the SistaMoon Foundation are not deductible as charitable contributions for federal income tax purposes at this time.
